Annual statement review meeting today at school, Ben came in for a few minutes and answered a few questions, surrounded by about 12 adults some of which he had never met before. Lots of tics during the morning (no he didnt know he was going to do this). Spoke to him about it and he agreed to come, tics all the way over to school and waiting in reception, during the meeting? none, how scary must that have been? in yet he did it tic free.
Joe came into the meeting too, having been at school his lovely TA talked him through it and came in with him. He was nervous so had a few tics but remained smiley and answered some questions quite confidently.
Our fantastic boys never cease to amaze us, coping with this cruel, unpredictable condition, suffering often with very severe full body tics, they bounce back time and time again.
Where do they get this resilience from? Another lovely mum said her daughter often copes with it better than she does. I would agree, often I am at breaking point, but the boys bounce back time and time again.
Well done Joe and Ben you are truly amazing.
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