Sunday, 8 January 2012

Angry

The more I think about David Cameron uttering those words the more angry I get.
Some people will probably think I am over reacting but I feel that when people make flippant remarks like that it shows their true colours. 

David Cameron is supposedly a well educated person having been educated at Eton I believe.  What I also believe is that he does not live in the real world. He has never lived in it and he never will. How can he be the voice of this country when he has and continues to lead a very privilidged life. I dont believe he can relate to the ordinary working families that helped to vote him in.

What he should be able to relate to though is what its like having a child with a disability. No matter what the disability is it affects the whole family.

I would personally like to invite Mr Cameron into the home of a family that has a child with tourette syndrome. To witness the stress, upset it causes on a daily basis.  Will they or wont they get to school today?  How bad will their tics be? Will he kick his leg so hard today that he cant walk on it?  Will the Many children have to take something to help them sleep to stop them being kept awake half the night because of the tics. To witness the effect it has on the childs self confidence when he shouts uncontrollably in public.  To witness a school day, not getting into the majority of classes due to tics.  Not being able to access the curiculum like most  children, to not be able to participate in PE, to miss out on the extra curricular activities that most children and parents take for granted.

For the family to have to think in very fine detail where they are going on a day out, will the child be able to cope with the environment, how long can they cope with the environment.

The BBC debate on the radio last night, inevitably got around to the uncontrollable swearing that some people with TS unfortunately have to bear. But this is not just what TS is about.  People are hospitalised with it because their tics are so bad they cannot function. They pull muscles, break bones, burn themselves. We have been to A&E on 3 or 4 occasions due to stress on muscles - often very late at night.

The swearing tic as it is called is properly named Coprolalia.  This affects 10% of people with tourettes and it is a very difficult condition to live with.  I know of small children that have this, can you imagine what it must be like for a child who knows swearing is wrong to have this uncontrollable urge to swear. It is not something they can control.  You Cameron can control what you say - what is your excuse?

If I had a magic wand I would cast a spell to make him and others like Ricky Gervais live with the condition for a week.  See if they would mock after that - I dont think so.

No comments:

Post a Comment