oh dear

Tics getting increasingly bad at the moment. Ben horrible eye tics that trigger off his loud shouts and neck tic. Very distressed this evening. Last night 3 hours of tics keeping him awake. Thank goodness not tonight, about 1/2 hour but he was so exhausted sleep just took over.
Joe's leg kicking tic back with a vengeance - he too very upset and distressed.
Despite the tics getting worse as they always do this time of year, they are still managing some school. Not every day, and not necessarily full days but so much better than the last 4 years at this time.
School are being very flexible and it is really helping.
They have a personalised timetable as they are not getting into many lessons at the moment. They agreed today to add PE daily as this is something Joe in particular enjoys, and it may help him to get in on the more difficult days. Knowing he has something lighthearted to do on a particularly academic day can make all the difference. Ben too likes his 1:1 PE, which is no mean feat as its not his favourite thing.  Cooking & gardening will also be introduced periodically to add some interest.
New 'progress' classroom being built so the boys will have a proper classroom environment to work in when not in class. This is just fantastic, other children at the school will benefit from this too. Not just children with TS but other children with different needs. This will make it much more sociable for them all to work together and to understand each other.  As time goes on and tics get better the boys will hopefully get back into class more and be able to make some friends. 
Friends are being made but it is very slow and difficult as they are not in class.  School are also very aware of this and manufacture situations to enable them to be with one or two children they have already started making friendships with.
So, difficult days, but all good on the school front. 
This is a very unusual story Im sad to say, as many families with TS children going through the school system are having a lot of difficulties right now.  Lack of understanding and willingness to think outside the box, lack of funding for additional support.
I am very very grateful for our situation right now.