Mornings in the ticcy household :)

Ok, boys tics increasing mornings beginning to be veeerrrry stressful !
Not every day is the same which makes it worse because you never know what is coming ! We are treading on eggshells until we get to school.

Ben currently has problems lying his head down at night. He cannot stand the feel of his sheet on his head, we tried a velvet pillow ok for a while, not any more.  Covered the pillow with a towel, nope. Fleecy blanket ? Nope.  Dressing gown, yep ok thatll do then until his tics get used to it and wont allow him to put his head on it.  Triggers severe vocal tics.
He is waking up in the morning shouting, yes shouting. Tics as soon as the poor kid opens his eyes. Shouts are so loud Im seriously considering wearing his ear defenders.

Joes tics also on the increase, yesterday couldnt wear his school shirt tucked in, couldnt do the top button up and couldnt wear his tie. This really distressed him as he wants so much to fit in and be 'good'. He is frightened he will get into trouble despite being told its ok. As a consequence of this in the mornings, his tics are setting off. Again very vocal, shouts, rada rada.

Breakfast in our house is not a calm affair as you can imagine - or can you?
Im not sure anyone can imagine or begin to understand it if they havent lived it.

We then attempt to get in the car - can I drive with two ticcing children shouting their heads off ?  I have to - there is no option.  All this before 8am. 

This is what our mornings are like at the moment, welcome to our world.

I see all the kids walking to school laughing, jostling each other, having a really nice time.  It makes me very sad for them, they are missing out on so much. Yet despite this they continue to smile, continue to join in lessons and remain positive.

I was told today that Joe was really ticcy in maths and the LSA really felt he should have a break but he refused to leave because he loves it so much. Well done Joe - very proud.

Ben had a note written in his home school book that despite the difficult week he had last week, he remained smiley, positive and polite. Well done Ben - very proud.

Mouthsplints? Well we are still seeing a little difference. Bens severe vocal tics are normally accompanied by severe body tics, thrashing around. This doesnt seem to be happening, its just mainly vocal.

Joe cannot wear his at the moment due to it rubbing so he has gone on a whistlestop tour of Torquay today to get it sorted. Evidently he couldnt walk at all without kicking his calf severely on the way and his dad had to give him a shoulder carry. However, wearing the splint on the way out, he has walked to the station. He is kicking his leg but not as hard or severe. So maybe just maybe ......... Im not religious but I might have to start praying :)