My Poem

Life was going wonderfully for my lovely boys

Then one day Ben was sitting playing with his toys

I heard a shout and went to see, wondering what on earth it could be

I watched him playing, sitting on the floor

Unaware I was standing silently by the door

The shouts continued every now and then

He was only six my lovely little Ben.

From shouts to twirling and tripping himself over

Huge problems with shoes, trousers and pullover

This was all very scarey and very new to us, yet I knew  in my heart I was sure what it was

Toe tapping and foot stuttering hampered his walking

Stuttering also interrupted his talking

The shouts continued every now and then

He was only six my lovely little Ben

His dad and I knew as an identical twin

Joe was very likely to follow his kin

Sure enough a few months after, Joes tics started and stopped the laughter

Writhing on the floor shouting and crying

Where do we go from here?  we said sighing

This is just dreadful, what a blow

He was only six my lovely little Joe

With waxing and waning we thought it had gone

Our lives lit up again the sun once again shone

Then Joe and Ben peaked just after Christmas, we really struggled, didn’t know what had hit us

We didn’t know what to do or where we could turn

It felt our family was about to crash and burn

There was so much emotion within our home

Is this what it is like, living with Tourette Syndrome?

A few years on there are good days and bad

At times we can still get really sad

In the beginning you think you will never cope, but love and understanding gives you hope

The more informed and knowledgeable you become

The more understanding you can be as a mum

Bringing up boys is difficult at best

To live with TS as well is the ultimate test

Hope you like it :)